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Raising awareness and generating change for the 300 million people worldwide living with a rare disease, their families and carers.

Today is Rare Disease Day! We are inviting everyone to share their colours and raise awareness for the 300 million people living with a rare disease around the world. By coming together to advocate for change, we can achieve equitable social opportunity, healthcare, and access to diagnosis for people living with a rare disease.

Across the globe, the international community has organised events ranging from home, office and building illuminations to tea parties, conferences, policy events, contests and many more! To discover all of them, take a look at the interactive world map of Rare Disease Day events.

This 28 February, share our Official Rare Disease Day video to spread our call for equity!




Find out more about Rare Disease Day.

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