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Rare Disease Day 2022

Rare Disease Day 2022

What is rare disease day?

Rare Disease Day is the official international awareness-raising campaign for rare diseases which takes place on the last day of February each year. The main objective of the campaign is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients’ lives.

Rare Disease Day was launched by EURORDISRare Diseases Europe and its Council of National Alliances in 2008.

How to show your support for rare disease day

Raising awareness of what it means to be rare There are over 300 million people worldwide living with a rare disease. Together across borders, and across the 6000+ rare diseases we work towards more equitable access to diagnosis, treatment, care and social opportunity.

The key message for Rare Disease Day 2022 is SHARE YOUR COLOURS!

IMP supports Rare Disease Day and encourages everyone to get involved in raising awareness. 

Watch the Rare Disease Day 2022 video.

Screenshot from Rare Disease Day video

Find out more at 

Don't forget to use #RareDiseaseDay in your social media posts.

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