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Significant progress has been made with the Genomit - Global Mitochondrial Disease Patient Registry over the last few months.

Work is currently being undertaken in Italy in preparation for Mitocon to launch the Italian portal in 2023, with other countries planning to follow soon after. 

IMP will host an online meeting for representatives from pharmaceutical companies and regulators on in February. We look forward to providing an update on the Registry and discussing how we can work together with the common aim of improving the lives of people affected by mito. 

Please email This email address is being protected from spambots. You need JavaScript enabled to view it. to find out more about the Industry Meeting. 
Thank you to our members who have indicated an interest in running the Patient Registry in their country. If you are interested in establishing the Registry in your country, please email Jo.

Read more about the Registry


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