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17 January 2020

The first Rare Disease Day was celebrated in 2008 on 29 February, a ‘rare’ date that happens only once every four years. Ever since then, Rare Disease Day has taken place on the last day of February, a month known for having a ‘rare’ number of days. It is the one day of the year when attention is asked, on a worldwide scale, for rare diseases and their impact on patients’ lives. Through thousands of events, smaller and larger, awareness is raised among the general public as well as among decision-makers.

Since Rare Disease Day was first launched by EURORDIS and its Council of National Alliances, thousands of events have taken place throughout the world reaching hundreds of thousands of people and resulting in a great deal of media coverage.

The political momentum resulting from Rare Disease Day also serves advocacy purposes. It has notably contributed to the advancement of national plans and policies for rare diseases in a number of countries.

Even though the campaign started as a European event, it has progressively become a world phenomenon, with the USA joining in 2009, and participation in over a 100 countries around the world since the beginning. We hope many more will join again in 2020.

Download the official Rare Disease Day 2020 poster to display at your events, workplace or home and to share the message that RARE is many worldwide, RARE is strong every day, RARE is proud everywhere.  

We encourage you to share the Rare Disease Day poster on Facebook, Twitter and Instagram.

In the downloads section you will find these different poster formats available:

Poster to print

Poster for web and social media in jpeg format

Poster to adapt with translation in addition of your organisation or sponsor logos in psd format

Poster with white box for additional event information in psd format

If you have questions about how to adapt or translate the Rare Disease Day poster please get in touch at This email address is being protected from spambots. You need JavaScript enabled to view it..

Use the new Rare Disease Day 2020 Facebook cover photo and Twitter cover photo on your social media accounts.

Don't forget you can also customise your social media profile picture with the Facebook frame or Twibbon.

For more ways to get involved in Rare Disease Day 2020 take a look at the Rare Disease Day Infopack.


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