You are not alone 

People affected by mito sometimes feel isolated: geographically, emotionally and socially. With some forms of mito being desperately rare, it can be difficult to find others with the same condition.

IMP Member organisations have a variety of support services for people living locally.

Where there is no national body, people affected by mito can seek support from IMP.

IMP’s support services include:

Closed Facebook Group

The IMP closed Facebook Group is a virtual support group for everyone affected by mito. Members are spread around the world, have many different types of mitochondrial disease, some are patients, others are parents and carers, some may have recently heard of mito and be at the start of their journey, others have been part of the mito community for years. 

Members offer support, share experiences and provide a safe space to connect with others affected by mito.

If you’d like to connect with others in the mito community, join us today.

WHEREVER YOU ARE, YOU ARE WELCOME!

Medical Professionals Directory

We are building a directory of experts in mitochondrial disease who are willing to be contacted by people from countries with little or no specialist care. Contact us to request assistance with being put in touch with a medical professional.

If you are a clinician and would like to help mito patients in countries where local specialist medical assistance is limited or unavailable, please contact us.

Facebook page

Follow the IMP Facebook page to find out about the latest research and activities from around the world.

Contact us

Got a question? Get in touch via the webform, This email address is being protected from spambots. You need JavaScript enabled to view it. or Facebook and we’ll do our best to answer it – or find some who can!

(Photo by Fernando @dearferdo on Unsplash)