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PLEASE FIND BELOW A PRESS RELEASE BY THE WELLCOME CENTRE FOR MITOCHONDRIAL RESEARCH AT NEWCASTLE UNIVERSITY

 

Within the Wellcome Centre for Mitochondrial research at Newcastle University we are always searching for new and innovative ways to improve the lives of patients with mitochondrial disease. These innovations can take various forms, such as the development of new technologies  and finding new ways to connect and engage.

 

In the past we have found that the best ideas often come from people with direct personal experience of mitochondrial disease. To this end, we came up with the idea of holding meetings involving patients, researchers and technology designers to come up with ideas. Working with Open lab, also based at Newcastle University, and patient groups, we put together the  MYTO design events.

 

The MYTO events were a series of design events held in the UK, Netherlands and Italy in March and April 2018 bringing together people living with mitochondrial disease, technology designers and researchers. These events resulted in the generation of new ideas to help patients with mitochondrial disease. To view or comment on ideas please see the event webpage at https://myto.ideaboard.co.uk/ alternatively please follow us on twitter at @designingmyto

 

The success of this project was dependent on the co-operation and help of mitochondrial patient organisations, including the International Mitochondrial Patient (IMP) organisation, The Lily Foundation (UK), Spierziekten Nederland (NL), VKS (NL) and Mitocon (IT), who helped us to organise and run the MyTo events across Europe. We would like to say a huge thank you to all the patient organisations and the patients who gave up their time to help make this event a success.

 

Thank You!

                                                                          

 

 

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