Last December our friends from MEET organised their final and closing congress on mitochondrial disease in London. After a campaign of almost 4 years the Mitochondrial European Educational Training Project is ending in January 2017. In that period 11 PhD students and 3 post doc students were trained in the mitochondrial disease field, in 9 research centres throughout Europe. Hopefully they all stay committed to the mitochondrial research field. It is inspirational to see how a new generation of researchers grew to be involved in mitochondrial disease! 

IMP was invited to the congress as the energetic MEET’ers also raised funds for IMP with a crowd funding campaign and by participating in many sportive events around Europe. On this website we have been reporting about these.


THE COUNTDOWN HAS BEGUN! With only 100 days left until the tenth edition of Rare Disease Day on Tuesday 28 February, rare disease patients and organisations around the world have already started preparing their Rare Disease Day activities and events.

Get involved in Rare Disease Day 2017:

Become a friend of Rare Disease Day – everyone (companies, patients, researchers, healthcare providers and academics alike) can become a friend of Rare Disease Day!

Raise and join hands to show your solidarity with rare disease patients around the world.

Tell your rare disease story on

Download the Rare Disease Day logo* to use on your website or at your events and keep an eye on for the launch of the Rare Disease Day 2017 poster and video!

Hold an event - every year thousands of events take place at hospitals, patient organisations and research institutions across the world. Raise awareness by holding an event with fellow patients, policy makers, researchers or health care practitioners. If you are a patient or from a patient organisation you can post your event on You can also see other events taking place.


EURORDIS brings together the patient community and the 39 national rare disease alliances that are partners of Rare Disease Day. Since the launch of Rare Disease Day, thousands of events have taken place around the world. The Rare Disease Day campaign started as a European event and has progressively become a worldwide phenomenon, with participation in over 80 countries around the world in 2016.

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