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IMP has started to gather a list of existing Facebook communities for mitochondrial patients. Some of these groups are focussing on specific types of mitochondrial disorders. Besides the use of the English language some groups are having another leading language such as Italian, Spanish, Dutch and French. Some groups are organised by individuals and some are organised by patient organisations.

In any case all of these groups are aiming at connecting patients and families involved with mitochondrial disease. They are an online opportunity to meet others and share information, experiences and knowledge about living with mitochondrial disease.

Please feel free to suggest adding another FB group to us: This email address is being protected from spambots. You need JavaScript enabled to view it.

We believe that this new way of connecting people is offering a fantastic opportunity to people to share.

 

 

Facebook groups for patients

 

 

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