Archive News 2014
The Australian Mitochondrial Disease Foundation has updated its fantastic booklet on mitochondrial disease, aiming at providing information for medical practitioners. Providing (practical) information with the purpose of improving the quality of life of those who suffer from mitochondrial disease is one of the goals of the AMDF. The latest version of "Mitochondrial Disease - Information Booklet for Medical Practitioners" can be downloaded here.
At present there is a wonderful opportunity for qualified individuals to become part of the thriving and committed UMDF organisation. The important position of Director of Development is vacant. The Director of Development leads the organization's special events, major gifts, leadership gifts, planned gifts, grant writing, annual giving, and stewardship programmes.
Those who are interested may apply before the 20th of October, 2014. For more information: click here
On September the 25th The Lily Foundation from the United Kingdom has become the newest member of IMP. It is an asset to IMP that such an active and involved organisation as The Lily Foundation has joined the international network of IMP. With this new member IMP is becoming a stronger and even more powerful network of patient organisations involved in mitochondrial disease. For more information on The Lily Foundation
The Australian Mitochondrial Disease Foundation is delighted to award its first two Incubator Grants. One grant will facilitate Professor Justin St John's research into preventing the transmission of mutant mitochondrial DNA from mother to child. The second grant will fund Dr Matthew McKenzie's work in generating new mouse models of mitochondrial DNA disease that will provide tissue samples on which mitochondrial function can be studied. These inaugural grants form part of the pilot Incubator Grant programme.
Both these projects involve novel areas of research, which AMDF hopes will reveal invaluable information in the fight against mitochondrial disease.
More information: click here
During the weekend of 20th to 22nd April 2012 seventeen clinical and basic scientists and a patient representative met in Naarden, The Netherlands to discuss Complex I deficiency. Delegates work in six ENMC member countries (Finland, France, Germany, Italy, the Netherlands and the UK) and three non-member countries (Australia, Canada and Israel). The meeting was the first ENMC workshop dedicated to Complex I deficiency, the most common subgroup of mitochondrial diseases. For outcomes of the workshop and how this will benefit patients: www.enmc.org
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