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The World Mitochondrial Disease Awareness Week 2020 which took place from 13-19 September showed some fantastic results. In the Light-Up-for-Mito campaign 173 monuments were asking attention for mito while being lit in green; 173 landmarks throughout the world!

More than 40 events and special activities were registered in the awareness week and probably more than that took place. Different events of informational, educational and fundraising nature. For those who want to know the specifics: https://mitochondrialdiseaseweek.org/events/

One very special event was the Awareness Event on Facebook for LHON patients and their families. This is still available on the IMP Facebook page.

The Australian Mito Foundation organised a Symposium: "Gene Therapies and the Promise for Mitochondrial Disease"  with presentations which attracted interest throughout the world. The presentations can be found on https://www.mito.org.au/mito-foundation-symposium/

Everything was promoted and shared online, specifically through social media. With many thanks to the mito community which is so active, despite the difficult circumstances in the world this year.

We understood that some of the fundraising events made up a little bit of the financial sufferings due to the Covid-19 lockdowns. Although this will not solve all problems but it certainly helps.

If you plan to organise more activities to gain support for research funding you may use the Messages of Hope compilation video: https://drive.google.com/file/d/18pSXgC0JcGERhZOQq5gDPf_UK1xEremG/view

 

 

 

World Mitochondrial Disease Week 2020

World Mitochondrial Disease Week raises awareness of mitochondrial disease (mito) on a global scale through educational, fundraising and advocacy activities.

Word Mitochondrial Disease Week logo

Visit the website to find out more.

Activities include the awareness raising campaign: Light Up for Mito, mass participation walking and running events, and Stay in Bed Day. Educational events are held for medical professionals and patients around the world. 

Facebook provides a vital platform to raise awareness and share news of events and activities taking place. 

IMP coordinates World Mitochondrial Disease Week with assistance from the Mito Foundation in conjunction with its members.   

 

LHON Awareness Day logo

 

 

 

 

 

19 September


We are delighted to launch the first ‘LHON Awareness Day’. 

It is hoped to raise awareness of Leber HereditaryOptic Neuropathy (LHON), a type of mitochondrial disease.

We encourage the global LHON community to raise awareness in their local community and to join the inaugural ‘LHON: One Condition, Many Stories’ event. 

Please watch the event on Facebook Live at the IMP Facebook page from 5-7pm CET on Saturday 19 September 2020. 

 

 LHON Awareness Day event image                                                                    LHON Awareness Day event

 

  Working together we can focus the world’s attention on mito!

However you raise awareness, thank you!

 

© 2020 Int. Mito Patients