International Mito Patients has officially been granted ANBI status, the status of a charity organisation, by the Dutch taxation authorities. For more information click here.
Strategy Plan
IMP’s objectives
- To share best practices, information and knowledge, in order to:
- promote early diagnosis
- develop appropriate care pathways
- clinically manage the disease
- To be an international bridge between patients, clinicians, scientists, industry and policy-makers
- To promote and advocate for speedy development of treatments and cures.
Strategies
- Global Partnerships
Facilitate international partnerships between national patient organisations, researchers, clinicians, industry, regulators and funding bodies to propel us towards our vision.
- Research
Endorse high quality strategic research that will lead to more effective diagnosis, treatments, preventions and cures. In parallel, champion research into improved care, rehabilitation and coping with the many aspects of mitochondrial disease.
- Advocacy
Provide a global voice for patient advocacy groups to improve outcomes for patients around the world.
- Education
Provide and biennially update list of drugs that may be harmful to mitochondrial disease patients.
- Support
Facilitate access to specialists and the patient community for those in countries where there is no national patient advocacy group or mitochondrial clinicians/centres.
- Fundraising
Undertake fundraising activities to support IMP’s activities.
Remuneration Policy
The IMP Board and Committees operate on a voluntary basis. IMP contracts a part-time Director of Development and Operations and additional support when needed. IMP is grateful to its members for supporting the organisation with specific services and staff hours when required.
IMP is a lean organisation, governed by the IMP Board. The Board ensures member fees, grants and sponsorship are used for the benefit of the international mito community.
Information
C/o Lt. gen. Van Heutzlaan 6
3743 JN Baarn
The Netherlands
Email: This email address is being protected from spambots. You need JavaScript enabled to view it.
Chamber of Commerce registration: 53416104
RSIN (taxation number): 8508.72.236
Bank: ABN-AMRO, Postbus 749, 3000 AS Rotterdam, The Netherlands
BIC-code: ABNANL2A
IBAN: NL92ABNA0414343522
Contact us to request a copy of our Constitution.
Financial Accountability
IMP’s income is generated from three sources:
- Annual financial contributions from our member organisations
- Grants for projects in which IMP participates actively
- Donations from industry, to be spent at the sole discretion of IMP
IMP’s Treasurer and Board are responsible for IMP’s financial management. The Treasurer manages and controls the total budget. An annual financial report is published, after approval by the IMP member organisations.
IMP’s policy is to be transparent about all financial activities. A special policy on working together and receiving funds from industry, with the purpose of remaining independent, can be found here.
Annual Reports
Due to the uncertainties of the Covid-19 pandemic, very few IMP activities took place in 2021. The activities which did take place, such as national awareness events or the use of Zoom facilities, were underwritten by member organisations and did not cost IMP anything.
As per the 25th of November 2015 the Dutch taxation authorities have officially awarded the status of Algemeen Nut Beogende Instelling (ANBI) to International Mito Patients. Click here for the official decision.
