International Mito Patients has officially been granted ANBI status, the status of a charity organisation, by the Dutch taxation authorities. For more information click here.
Strategy Plan
IMP’s objectives
- To share best practices, information and knowledge, in order to:
- promote early diagnosis
- develop appropriate care pathways
- clinically manage the disease - To be an international bridge between patients, clinicians, scientists, industry and policy-makers
- To promote and advocate for speedy development of treatments and cures.
Strategies
- Global Partnerships
Facilitate international partnerships between national patient organisations, researchers, clinicians, industry, regulators and funding bodies to propel us towards our vision.
- Research
Endorse high quality strategic research that will lead to more effective diagnosis, treatments, preventions and cures. In parallel, champion research into improved care, rehabilitation and coping with the many aspects of mitochondrial disease.
- Advocacy
Provide a global voice for patient advocacy groups to improve outcomes for patients around the world.
- Education
Provide and biennially update list of drugs that may be harmful to mitochondrial disease patients.
- Support
Facilitate access to specialists and the patient community for those in countries where there is no national patient advocacy group or mitochondrial clinicians/centres.
- Fundraising
Undertake fundraising activities to support IMP’s activities.
Remuneration Policy
Management/board and organisation operate on a voluntary basis, they are not paid, do not receive salaries. This also applies to designated project managers who are responsible for running specific defined projects. IMP does not employ paid staff. IMP may contract specific services/staffhours from its members, such as back-office work, communications and datamanagement.
General costs, such as travel- and accommodation costs, and administration costs which are directly related to activities of the board or to events of IMP can be reclaimed. The policy is to make use of this arrangement in moderation and with great restraint. Travel- and accommodation costs for the IMP annual members' meeting will be reimbursed by the members themselves.
Whenever possible, IMP aims at avoiding costs by for its activities, i.e. annual member meetings at free-of-charge conference locations, unpaid website development, electronic communication as much as possible, etc. If there are costs, these are paid from the internal budget built up of the annual financial contribution by the member organizations of IMP.
The policy to avoid costs and, if there are costs, to pay them from the general internal budget enables IMP to spend 100% of its sponsored funds to its projects. For specific projects separate funding is searched for, and these funds are managed and monitored by the designated project managers.
Data International Mito Patients
Lt. gen. Van Heutzlaan 6
3743 JN Baarn
The Netherlands
Email: This email address is being protected from spambots. You need JavaScript enabled to view it.
Chamber of Commerce registration: 53416104
RSIN (taxation number): 8508.72.236
Bank: ABN-AMRO, Postbus 749, 3000 AS Rotterdam, The Netherlands
BIC-code: ABNANL2A
IBAN: NL92ABNA0414343522
Financial Accountability
IMP’s income is generated from three sources:
- Annual financial contributions from our member organisations
- (European) grants for projects in which IMP participates actively
- Donations from industry, to be spent at the sole discretion of IMP
Income from the first source is used to finance the organisational costs. Grants are used for the specific project they are assigned to and controlled as a project budget. Donations can be used for any activity requiring financing.
IMP does not raise funds for third parties or for providing grants for research.
IMP’s Treasurer and Board are responsible for IMP’s financial management. The Treasurer manages and controls the total budget. An annual financial report is published, after approval by the IMP member organisations.
IMP’s policy is to be transparent about all financial activities. A special policy on working together and receiving funds from industry, with the purpose of remaining independent, can be found here.
Annual Reports
Due to the uncertainties of the Covid-19 pandemic, very few IMP activities took place in 2020. The activities which did take place, such as national awareness events or the use of Zoom facilities, were underwritten by member organisations and did not cost IMP anything.
As per the 25th of November 2015 the Dutch taxation authorities have officially awarded the status of Algemeen Nut Beogende Instelling (ANBI) to International Mito Patients. Click here for the official decision.
