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World Mitochondrial Disease Week 2026

Save the Date for World Mitochondrial Disease Week!

This year's theme is Putting Mito on the Map. Join the global community to raise awareness, share stories, support research, and make mitochondrial disease more visible worldwide.

TK2d Awareness Day

Together, we can raise awareness of TK2 deficiency and celebrate progress towards better treatments and outcomes for people living with TK2d.

LHON Awareness Day

Help raise awareness of Leber's Hereditary Optic Neuropathy (LHON) and support everyone affected by this rare mitochondrial disease.

Light Up for Mito

Join landmarks, communities, and families around the world as we light up green to raise awareness of mitochondrial diseases and show support for the mito community.

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Mitochondrial diseases (mito) are a highly complex set of rare genetic disorders. Mito can cause any symptom in any organ at any age. They rob the body’s cells of energy causing debilitating and often life-threatening organ dysfunction.

About
MITO

NEWS

UCB calls all artists in the mitochondrial disease community

This year UCB is collaborating with the global Mitochondrial disease community to collect works of art (painting, poetry, photography, sculpture, […]...

Effect of a Mitochondrial Genetic Variant on Sevoflurane Hypersensitivity

Five years ago, a research project began that is now influencing  anesthetic practice worldwide. It all started when Dr. Yaremy […]...

First Patient Dosed in Phase 3 KHENERFIN Study of Sonlicromanol for m.3243A>G Primary Mitochondrial Disease

First Patient Dosed in Phase 3 KHENERFIN Study of Sonlicromanol for m.3243A>G Primary Mitochondrial Disease Khondrion has announced a major […]...

IMP Welcomes New Members from China, Spain and US

We are delighted to announce that three additional mitochondrial organisations have joined IMP, further strengthening our global network and amplifying […]...

IMP welcomes European Commission approval of KYGEVVI® for TK2d

European Commission approves KYGEVVI® for TK2d IMP warmly welcomes the decision by the European Commission to approve KYGEVVI® (doxecitine and doxribtimine) as […]...

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a member

The POLG Foundation

The PolG Foundation is committed to accelerating research efforts to develop effective treatments and, ultimately, a cure for POLG mitochondrial disorders.


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a member

Are you thinking of becoming an IMP member?

Patient Stories

Ellie was a fighter from birth. Born in October 2017, a lack of oxygen at birth meant she needed to spend the first week of life in intensive care. This early battle in life would later be a blessing in disguise as it meant she required regular neurological reviews to review how her brain and movement developed. Ellie’s early months were mainly happy. She cried, babbled and smiled like any baby does and loved baths with her big sister, kicking her legs to music and chatting away with her mum and dad.

About
IMP

International Mito Patients is a non-profit network of national patient organisations involved in mito. The national patient organisations support and advocate for patients, fund research, increase awareness and improve education in their country.

By joining forces, IMP represents a large group of patients, creating a stronger voice on an international level.

IMP’s mission is to increase the quality of life for people with mitochondrial disease by facilitating cross-border cooperation and collaboration among national patient organisations.


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