• Togetherwe are strong
    Powerful patient organizations from different countries in the world have joined forces in their fight to find a cure for mitochondrial disease.
  • Support us
    Any support in promoting and advocating a speedy development of a cure is welcome.
  • Our plan
    Through our network we will do our utmost to build bridges in the mitochondrial world so that the way towards a cure will become smoother.

Our organization

International Mito Patients is a network of national patient organizations involved in mitochondrial disease. Mitochondrial disease is a rare disease with a limited number of patients per country. The national patient organizations which are a member of IMP each are active and powerful in their own countries. By joining forces IMP can represent a large group of patients and as such be their voice on an international level.

Our mission

International Mito Patients has the following mission:


TO INCREASE QUALITY OF LIFE FOR PEOPLE WITH MITOCHONDRIAL DISEASE BY FACILITATING CROSS-BORDER COOPERATION AND COLLABORATION AMONG NATIONAL PATIENTS'ORGANIZATIONS.


The objectives following from this mission are as follows:

  • To share best practices, information and knowledge, in order to: - promote early diagnosis; - develop appropriate care pathways; - clinically manage the disease;
  • To be an international bridge between patients, clinicians, scientists, industry and policy-makers;
  • To promote and advocate for speedy development of treatments and cure.


  • IMP members

    At this moment there are 11 full members of IMP. All are active national patient organizations representing patients and their families involved in mitochondrial disease. Together they form the voice for at least 5,500 mitochondrial patients worldwide. And this voice can only become stronger and louder once other organizations join IMP.

    For a full list of our members and a link to their own websites please click here.


    Membership

    IMP knows two kinds of memberships:

  • Full membership is open to national patient organizations which represent patients and their families involved in mitochondrial disease in their own country.
  • Associated membership is open to groups, organizations and individuals, not being national patient organizations, but strongly involved in mitochondrial disease.

  • If you are interested in joining do not hesitate to contact us:

    info@mitopatients.org